August 4, 2005
No Lupus
Well, the doctor did say this morning that he's not at all concerned about Lupus, based on my tests -- and that is what my general practitioner was looking for.
So I'm glad that there's no lupus as that is just a scary yucky thing. But I'm really frustrated that his answer to everything was: get better sleep. Maybe somewhere down the line, if I keep whining, he'll order a sleep test.
His secondary answer: lose the weight. Duh. No shit, you think maybe that's why I only eat about 400 calories between waking and leaving work, 'cuz maybe I'm trying to work on that? His response, "Well, I fast once a week to keep my weight down."
*sigh* So I'm gonna keep a food journal for the rest of August and see if I can prove to the doctors (and myself) that I'm really NOT over-eating. I don't really eat sweets; I'm not much of a chocolate person.
Basically, I've had it with people assuming that I can't drop weight because I can't quit eating. Now the exercise, that's a routine I can't seem to stay in, that'll I'll give you. So, this weekend, I guess I'll find a way to clean out something in the basement so we can get the "new" home gym all set up.
Finding out that I don't have lupus should have put me in a really good mood. Instead, I'm just frustrated (and whining - sorry about that). Your muscles and joints area not supposed to ache all the time. I don't have arthritis, the thyroid is fine and there's no lupus. I think all that's left is chronic fatigue and fibromyalgia.
Oh, and of course, poor sleep.
Argh.
Posted by Red Monkey at August 4, 2005 11:02 AM |
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oh, I'm so sorry. I have fibromyalgia, and it sucks hard core. There are days I don't want to get out of bed because my feet hurt so bad. I certainly know about aching all the time.... I hardly even notice the "normal" aches anymore, just when they get really bad. Good luck.
August 5, 2005 1:44 PMMergrl said:
Dont' give up even if your tests came back negative, I got lucky I was diagnosed with Lupus in 6 months (after having tests come back neg) and it took a friend of mine almost a year to get a diagnosis of fibromyalgia. Aching all the time is not normal, no matter what your weight, get a second opinion from another rheumatologist and good luck. I hope you feel better soon
August 5, 2005 6:06 PMAndy T. said:
Have they tested your thyroid?
August 8, 2005 6:14 AMenderFP said:
yup, thyroid was already tested and it's fine.
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