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I'll admit it, I wasn't prepared. I felt just fine. Everything seemed
to be going incredibly well.
However, the PET scan showed "hot spots." A PET scan only looks
for activity, which usually indicates some type of infection. It can't
really tell what the problem actually is. If the spot I was complaining
about was just scar tissue, it would come up cold.
There were several "hot spots."
I had a lesion on/in two vertebrae in my lower back (L3 and L5), which
I assume was causing my mild back aches. There was something on the spleen
and a few other spots as well. In fact, it looked like there was an enlarged
lymph node in the groin area that had gotten so painful.
My doctor was not happy. He did a physical exam and still couldn't actually
feel that lymph node. If it hadn't been for the PET scan, we wouldn't
have caught it so early. However, he needed to send me in for another
CAT scan to make sure that this wasn't just some random hot spots. Off
to the hospital again for another boring test. At least I didn't have
to sit still for nearly as long this time!
Now there was another week before the scan took place and then almost
another week before I got the results back. Meanwhile, I was telling everyone
that the first test was inconclusive and that more tests were needed.
Really, I was more than a little stunned. I'd thought it was over.
The CAT scan revealed enlarged lymph nodes in several spots -- enough
so that I have to have another bone marrow test next week (February 27)
and then a biopsy on March 7. After the bone marrow test (which will hopefully
say that there's no Hodgkin's in the marrow) and the biopsy, then I'll
start chemo again.
This time I'll go in every three weeks, but I think I go in for three
days in a row. After at least six weeks of this (so, two rounds of treatment),
they'll run another scan to make sure that the chemo is working. If it
is, I "get" to go to Indiana University-Bloomington's hospital
for four weeks and a bone marrow transplant/stem cell rescue. Four weeks
in the hospital! I'm going to be SO bored.
But,what's even scarier to me is that while working on this website I
realized that even with insurance, my hospital stay is likely to be at
least $28,000. That's still more than I make in a year. And that's not
counting the chemo I'll have to take before that, the lab tests, the PET
scan and CT scans that I've already had.
My car is dying. I haven't driven it in weeks, probably a month. (Cars
aren't supposed to make a big, metallic, THUNK every time you turn, right?
I mean, a huge thunk out of the front passenger wheel well sounds more
like the tire's about to crack off the car!) Now I'll have to save my
money to pay all of these medical bills instead of getting another car.
I have no idea how I'll physically get myself to Bloomington, IN, for
the bone marrow treatments. I'm sure I can catch a ride with a friend,
but still. Shoot, I thought now that I was out of debt I'd be getting
a newer used car soon. I thought I'd be able to save to get a house in
a few more years. Now it will be years and year before I'm out of debt
at all and can even think about those things again.
It's depressing. When I should only be thinking about getting better,
I have to worry about paying all of these bills. Now, don't get me wrong.
I had to declare bankruptcy when I did or I would be sued for all of those
other bills that I couldn't pay from the first diagnosis in 1999.
Finances >
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